A Note from IAHP

Gw quote kata-kata penyemangat ini dari salah satu materi yang diberikan oleh IAHP, booklet "The Pathway to Wellness" saat gw mengikuti What to Do to Your Brain Injured Child. Love it xo

" There is no such thing as false hope, but there is false despair
Time is the enemy of the brain-injured child.
Everyday he is not better he is worse, since his peers move on and he falls further behind.
Never do anything with your child that you do not understand or agree with completely.
Explain everything you are doing and why you are doing it to your child.
Trust yourself
You know your child better than anyone else.
Beleive in your child-you have everything to gain and nothing to lose if you do.
Your brain-injured child is tougher than you think.
Your brain-injured child is the bravest member of your family.
Your brain-injured child deserves the best-search for it, find it, and get it for him, no matter what.
Never, never, never, never give up."

Yes parents, your hurt child needs you to stand for him/her......do everything you need to do  no matter what...Jika kita bertekad dan bersungguh-sungguh menginginkan sesuatu then universe will help us.

My Gratitude to God and my babies

"First time I saw my son, I knew I was in love
Because he was the gift I got from somewhere up above
O wow, o yes, o joy, so joy right here in my arms
He looks at me, I can see he's showing all his charms
Can't remember what I do before I saw his face
But now he's here and I can feel his amazing grace

Watching him play, somehow reminds me of myself
Once upon a different time when I was someone else
O me, o my, I feel so high every single day
O yes, o lay, my lord yea yea watching my son play
First time he'd walk detours I step in to a chance


I took his hand and then we start it likes dance
The first dance was so fine that I never will forget
He held my hand so tightly that I had start dancing yet

My love, my boy, my son, my joy always keep your glow
And know that love will be with you wherever you may go
And if something should fall apart somewhere down the line
Just tell me all about it and I will make it fine

I'd travel many roads before but somehow they were wrong
And sometime we find that life is just a simple song
Even the saddest songs ever human face
I will always keep my son in love's magic place"

by Lisa Ono

Lagu ini selalu berhasil menghangatkan hati gw. Mengingatkan pada perasaan saat pertama kali jadi ibu. First time when I saw a positive sign on my pregnancy test, the first time my baby kick me, the first time I saw his face and heard his crying.....It's a miracle that change my whole life......Now that I have 2 amazing child, Arya and Naomi, rasanya tak cukup terima kasih yang bs gw sampaikan ke Tuhan. I feel blessed, Dia mempercayai gw untuk taking care of 2 wonderfull babies.....each with their specialty....Arya yang lincah dan ceriwis juga Naomi yang so lovely......

Arya is amazing, he got a really charming smile....perkembangan motoriknya cepat....berjalan saat berumur 11 bulan sehingga pas 1 tahun dia benar-benar sudah balance and start to run...hahahahahaha.....Arya mengerti dengan cepat and he really is a nice boy......Ya, ada kalanya dia out of control tapi bila diberikan pengertian dengan jujur dan logis arya akan mengerti dan menurut.

Naomi is a huge surprise for me. She is a baby girl that I had wanted for years....Saat tau gw mengandung a baby girl...My heart is jumping, and I dream of the day when I and my baby doing our spa together...xixixixi.....The fact that she got T21 tidak mengurangi rasa terima kasih gw yang sangat besar kepada Tuhan.....bahkan rasa syukur gw makin bertambah dan entah kenapa gw merasa lebih bahagia......because deep down in me I know that  Ida Sang Hyang Widhi loves me a lot and decided to send me His beloved angel...He knows that I'm the right person to get Naomi :) and I promise I won't dissapoint Him....

In the end, my babies.....I want to tell you how much I love both of you.....There is no way I can live without you..........Thank you for being such an angle for me....Thank you for all your charming smile to me....Thank you for your hugs and kisses for me....Thank you for choosing me to be your mom......I promise I will always be there for you and make you reach your full life.

PS: I think I'd better say this to them this night......can't wait to give them a big hug

Lendir berlebih pada pernafasan anak dgn T21 REVISED (bold part is new)

Parents, siapa yang merasa anak T21nya mudah berlendir hidungnya? Bobonya agak bersuara "grok grok atau krrr krrr", mudah batuk pilek.......kebanyakan anak dgn T21 punya masalah dengan "perlendiran" dan itu bisa saja terjadi oleh berbagai macam penyebab.....berikut gw list beberapa possible factor selain tertular virus flu (setau gw):

1. Konsumsi susu sapi dan olahannya. Bbrp artikel yang gw baca menyatakan bahwa konsumsi susu sapi dapat memicu sekresi lendir yg berlebih. Jadi memang sebaiknya stay away from susu sapi.....Naomi g pernah gw kasi susu sapi dan thx god, dia g pernah mengalami perlendiran yg parah akibat susu tersebut.
2. Sekresi cairan oleh sinus yang terperangkap karena drainase yang kurang lancar. As we know, perkembangan kerangka tengkorak anak dgn T21 menyebabkan mereka memiliki bentuk permukaan wajah yg khas....flat face.....alias hidung mblesek, pesek. nah dengan struktur tulang yg demikian maka saluran dari sinur hingga tenggorokan juga tidak selega yang dimiliki anak normal. Cairan yang dihasilkan dalam jumlah normal pun dapat terhambat sehingga mengumpul di area sekitar hidung dan alis....saat cairan yg terkumpul sudah banyak dan tebal akan mudah terserang kuman....oleh karena itu penting untuk melakukan facial massage guna memperlancar drainase cairan. Osteopathy juga sangat berguna untuk mengntuk atasi masalah ini.
3. Partikel-partikel di udara yang menimbulkan reaksi alergi sehingga memicu pengeluaran lendir. Udara di dalam rumah terkadang bisa lebih kotor dibanding udara di luar rumah. Ada debu, kutu debu, jamur di tumpukan buku, lipatan kain korden, karpet, sofa bahkan tempat anak tidur. Semua itu dapat memicu reaksi alergi sehingga sinus mengeluarkan cairan lebih banyak dari seharusnya. Belum lagi virus yang terdapat di udara dalam rumah. Akan lebih baik jika kita menginvestasikan sebuah air purifier berkualitas untuk anak kita.
4. Penggunaan Air Conditioner (AC). Penggunaan AC akan membuat udara di dalam ruangan menjadi kering. Udara yang kering akan merangsang sinus untuk mensekresikan lebih banyak cairan. Oleh karena itu upayakan menggunakan humidifier apabila menggunakan AC di ruangan.
5. Penggunaan alat masak yang mengandung plastik like Teflon dan container bekal dari plastik. U know, sejak pembantu pulang gw sering bawa naomi juga klo gw pergi2, jadilah gw pake tempat makan plastik....gw sudah pake yg notabene safe dari MLM container plastik foodgrade ternama......nah, sejak saat itu pula hidung naomi g pernah clear.....gw suspect krn dingin atau angin, bahkan setelah itu di NAET stuffy nosenya g kelar2 juga.....akhirnya gw nyerah dan membiarkan terapist NAET cari tau sendiri....ternyata dia alergi plastik.....setelah NAET plastik, pileknya mulai kental dan berhenti......Lalu baru bbrp hari lalu gw baca penggunaan teflon juga dapat memicu flu like symptom.....Nah....teflon is made of plastic.....so better buang...yaaaa BUANG teflon anda....pakai saja stainless steel atau pyrex saja. Nah giliran gw niy yg mau tanya k parents...klo happy call itu claim dr ceratinum truss icooknya anti lengket amway dari duramic...itu ada unsur plastik g ya? ada unsur aluminium g?.....gw jd curiga sama alat masak gw......sampe skrg masih gw pakai, sedang pertimbangkan untuk membuangnya ganti stainless/clay pot aja.....please parents if u know kasi feedback ya....

Parents, upayakan agar anak kita bisa lega bernafas. Lendir yang diproduksi secara berlebih dapat menyumbat saluran nafas dan menyebabkan sleep apnea. Kondisi tersebut sangat tidak baik bagi perkembangan otak anak krn pada saat mengalami sleep apnea otak akan  kekurangan oksigen sehingga sel-selnya dapat mengalami kematian dini. Not a really good news huh......So u better keep that nose clear.....